Your experience of sentinel lymph node biopsy for NICE guidance
Categories: Lymph Nodes, Committee
Magtrace and Sentimag is a lymphatic tracing and locating system used to determine where lymph nodes are for removal for surgery. The committee looking at Magtrace and Sentimag will be making recommendations for its use in the wider NHS.
What’s the project?
NICE would love to hear from you if your breast cancer was treated with either:
- First treated with the radioisotopes and blue dye (dual technique), and then a later date Magtrace and Sentimag, OR
- Treated with radioisotopes and blue dye (dual technique), OR
- Treated with Magtrace and Sentimag.
Why do you want me to be involved?
NICE is seeking a patient expert because it’s important for the committee to hear of the patient experience of using this system, alongside clinical opinion and the published evidence. A committee member’s comment: “The patients give a human perspective to the use and experience of having a device. They often have very useful anecdotal information about their experiences. In addition, it helps the committee to consider more health inequalities related considerations. Overall, having a patient expert means that we get to hear about the full circle of implementation and adoption potential in the NHS.”
What will you ask me to do?
The selected patient expert will be invited to:
- submit a written personal statement
- be supported by and liaise with the public involvement lead (Helen Crosbie) leading up to the committee meeting (along with technical support if necessary)
- participate in the Lead Team pre-committee meeting teleconference
- attend the Medical Technologies Advisory Committee meeting on 22 April 2022 to provide their experience of having the Magtrace and Sentimag for locating sentinel lymph nodes and answer any questions the committee may ask
- claim expenses back for their time contributing at the committee meeting in line with our expenses policy
- comment on any consultation documents produced
Who can take part?
People applying to be a patient expert should:
- have knowledge or experience of having sentinel lymph node biopsy (either personal experience or an in-depth understanding of the views of a range of patients or carers) and/or invasive breast cancer
- be confident about speaking at a public committee meeting (to be done virtually, via Zoom)
- agree to be bound by the terms and conditions of NICE’s confidentiality agreement
- be willing for their name(s) and their personal statement to be published on the NICE website in relation to this evaluation
Share your voice
This opportunity has expired. You can check out our Share your voice page for more ways to get involved.