Share your experience of living with lymphoedema

What’s the project?

We’d like to use the words and experiences of Breast Cancer Voice in our booklet, ‘Living with lymphoedema after breast cancer’. If chosen, we’ll use your quotes throughout the booklet to make the information relatable and personal. 

We would only use your quote and first name in the booklet, and you can choose to use a different name if you would prefer. For example:

"Yoga has been a great way for me to get back to into exercise and prevent fluid building up in my arm and chest" – Jane

Why do you want me to be involved?

We want to ensure our information represents the diversity of people who experience breast cancer. 

What will you ask me to do?

Please fill out our survey about your experience. 

We want to make sure the quotes included help people to live well with lymphoedema, so it would be useful if your answers contain helpful tips about your experience.

We may not be able to use everyone’s quotes in the booklet as we will have limited space for quotes. But all your experience sharing is invaluable to making sure our information is personable and user-friendly for people living with lymphoedema. 

Who can take part?

Anyone who has lymphoedema, whether it affects a small or large part of your body. We want to hear from a range of people with different experiences.

Who’s organising it?

Megan Stansfield, Editor, Breast Cancer Now 
– Megan.Stansfield@breastcancernow.org 

When’s the deadline?

This opportunity has expired. 

How do I get involved?

This survey is now closed. Once we have updated the booklet we will be in touch with everyone who helped to fill out the survey. 

Location

Online